...and afterward your mouth tastes like pennies.
A lot of people don't know this, because it often gets completely overshadowed by Breast Cancer Awareness Month, October, but November is Epilepsy Awareness Month.
In honour of E-Awareness, I thought I'd share some of my owne epilepsy-related statuses and stories from the last year :)
April 5, 2011-
- I *seriously* need to sequester myself until my brain gets used to this drug increase hahaha. Seriously. Remember when I told you in one of my "Epilepsy Stories" about the time I cried at that stupid gum commercial?? Sooo I totally just cried because I was "so proud" that I fixed our sink's drain stopper earlier.....you read that right. Our SINK. THIS MORNING..... It's gonna be a very long week hahaha
November, 2011-
- Keppra Story#2- there's a tiny black bug who hangs out in my room 24/7; I named him Mitey (he just looked like a Mitey). Well this morning he wasn't in his leaf house so I thought he died (crying ensued). I'd shut him out last night and he was seriously waiting to be let back in. I cried when I found him hahaha and that's the story of Mitey-bug.
April 7, 2011-
- is it horrid that I mentally shout "Score!" every time I hear an ambulance because that means it's not for me? I feel SO evil, but at the same time, I'm thinking, "Not injured, no hospital, baby!" (I have that scribed on the reverse side of my epilepsy med ID bracelet). I'm mean. Excuse me while I cry about it (growl. Keppra...)
April 8, 2011-
- peaced out from church...I was tempting fate. Good decision though- "my" paras were parked across the street eating lunch :) They asked me how my seizures were, I asked them how their day had been, we talked a little more about my epilepsy you know, like it is between buddies. We parted, so we could both eat, with, "Maybe see you soon. Happy Easter!" Oh dear hah
April-
- okay maybe not so much now; headache down to my teeth.I have seriously been inside this library cave for 9.5 hours. Without leaving. Without eating. Without drinking. OMG. *screech* @#*&$^!%?!@!@!@?? No drinking?!?! Sh!t-I forgot to take my meds. Feck that, not-even-due-yet paper. Peace out cave!!!!
Mother of God....
BYE GUYS.
BYE GUYS.
"- so weepy from my drugs it's hilariously ridiculous! I'm laughing at myself because I'm crying so much. A favourite professor sent me an email wishing me well with my EEG tests this coming week and I got all weepy because his class ended and he was one of my favourite teachers. I'm sad to see his class end but he'll still be here so I can visit him in his office whenever I like! It's definitely not like I'll never see him again haha :) Oh Keppra you ruin me hahaha
These updates are from my time in the hospital for my VEEG....pretty good stuff here too haha
- so nervous for this VEEG- I will never EVer be okay with seizure induction but (the filthy! the sick!) part of me hopes I will seize. I don't care about Absence seizures-they happen all the time and they don't hurt me. But if I were ever to have- on my OWN, with nOTHing creating or inducing it- a grand mal I would want it there.
- We are "let out" for three 10 min. walks per day (trimmed down if there's seizure activity *sadface*) and, since our doors are naturally open, we get to meet (and greet) new friends. Just made another friend, Rachel, who stopped by my door- we've been smiling at each other all day as she walked by :) I like when we are allowed out.
- oh no...they're giving me EEG Method Testing today. I don't care about those other tests, they only give me small seizures, but they're going to give me the photic strobe test and my body is going to betray me in all sorts of ways. I'm not eating...or drinking...and I'm asking for restraints."
"-
whoa. The epilepsy patient I briefly talked to yesterday stopped by to
talk more and I realised that she has some pretty significant brain
damage because of her seizures. Also, the lady in the room next to me just died.
Uh....
-
scoping out my new neighbour across the hall....there's
seizurey-something but she's sleeping and I'm dizzy so meets shall have
to wait until later.
I'm sitting on this damned exercise bike until something jerky happens....
(...4 hours later...after riding the bike for 3.5 hours...)
- I didn't hop off, I was lifted...
I passed out- kind of the opposite of a seize.
*sigh*"
- there are exactly 6 alarms going off right now on the unit and a Sprite can seriously magicked itself out of the air onto my tray. My reward for doing nothing?"
"- any possible seizure trigger has been petted and fluffed...
(caffeine, alcohol(s), aspertame, plenty of meat-eating, contrasted
lights, being awake for over a full day, cold air, cold "shower", and
piping hot food. Oh, and the threatening grimace of the PS40R in the
corner)
...all that's left to do now is sit and wait."
"- O Holy God, please? Just give me one seizure that seriously kicks me into the floor. I don't mind...I welcome it! Seizure? Please?
"- the EEG is off....I'll kill myself if I have a seizure right now. Seriously. Positive note, my meds are being re-started! :)
Then there are the pitiful sad days;
"- it might sound soo stupid but I don't want to leave my room. I know I need to be chill about everything and just deal with it but I am so worried about seizing. Sundays are always the very worst. My brain is probably just laying in wait..."
The sad yet funny days;
"- I have 4 BandAids on my neck from electrodes, glue hair, bruises from the IVs that are so big I look like a heroin addict, and now a f---ed up wrist. *sigh*...changing meds sucks."
- woohoo, test grading movie night :) Then library for homework...and a seizure..."
The I've-accepted-my-fate days/ the "I love "my" EMTs days";
"- judging by how it's kicking off, today might actually be worse than yesterday. I'm actually accepting my fate and am expecting a seizure. *sigh* This is going to be just great.
"- back to campus...I'm buying cookies for the EMTs, poor lads...
The REALLY?!?! days;
